Please find below the Privacy Policy of our PLN Genetic Heart Disease Foundation, trading under the name PLN Foundation, registered under the Dutch Chamber of Commerce number 55839002.

Privacy and data use

The PLN Foundation considers the protection of PLN patients data and family members to be extremely important. We confidentially treat the personal information you provide with the utmost care. We only use these data to inform you in a correct and careful way about the PLN genetic heart disease and related subjects/activities through our website and Social Media.

The PLN Foundation only registers these necessary data for its activities. We treat the information you submitted with the utmost care and do not provide your data to third parties, other than based on outsourcing projects where your privacy will be guaranteed unless you authorize us to disclose your data or if required by law.

The data we register are the personal ones you provide us when visiting our website and the data we need for the right handling of your requests to information, questions or contact with other PLN patients. Your name, address, email address and contact data are important information we safely back up in our database.

We use this data for the purpose of which you have submitted this data to us or for the purpose of which we have obtained this data. Your data will be confidentially used by us, as well as by the parties we engage for our Foundation activities, in accordance with the Personal Data Protection Act (PDPA).

Consultation and correction

You always are able to request and to consult your data we register on your behalf. At any time, you also can ask us to correct or make this data complete.

Data backup

We store your data as long as necessary to be able to guarantee a qualitative and careful service and to be able to comply with your requests. Your data will be destroyed the moment we no longer need them.

Safe en secured

Your data is secured by us in an appropriate way against hacking, data loss or other unlawful use this data could be used for. For that purpose, the communication process on this website runs through a secured environment where necessary.


Do you have any questions or comments about this Privacy Policy? Please contact us through our online contact form.


We reserve the right to make some change or modifications to above Privacy Policy, so please check regularly this web page. Latest update of this online page is in March 2017. Should these amendments be an infringement of your privacy, we will inform you in a suitable and timely way and will give you the opportunity to consent or not.