HELP SCIENTISTS TO UNDERSTAND

The PHOspholamban RElated CArdiomyopathy STudy (PHORECAST) aims to investigate several aspects of the PLN p.Arg14del mutation and the carriers of this gene mutation.

Some of these research projects include PLN p.Arg14del mutation carriers and their medical information. Examples are studies into the large variability in symptoms and signs of the disease. Fundamental studies to understand how the PLN mutation leads to disease and how the disease could be treated are also initiated.

Mutation carriers who live in the Netherlands are registered in the PHORECAST (Dutch website) database.

Help scientists and register now!

Register now as PLN carrier!

If you are a PLN carrier living outside the Netherlands, please do not hesitate to fill out this form and indicate:

whether you want to be on the mailing list of our PLN Genetic Heart Disease Foundation;

whether we can share your information details with the PHORECAST researchers;

whether the researchers can contact you directly for additional information and/or to possibly participate in PHORECAST projects.

Privacy Policy

We consider the protection of your patient data to be extremely important and will treat the information you submitted with the utmost care. Please check our Privacy Policy on this website for more information.


Your completion of the following registry form is important for both our Foundation and researchers, and all PLN carriers we would like to identify at an early stage and to provide them with the right medical treatment method.



















• I want to be on the mailing list of the PLN Genetic Heart Disease Foundation

• I agree to share my information details with the PHORECAST researchers

• I agree that the researchers can contact me directly for additional information

and/or to possibly participate in PHORECAST research projects


 

 

 

Many thanks for your understanding and cooperation! Please feel free to contact us if questions appear.

 

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